Monday, July 6, 2009

Dear Dad,

Angie's cardiologist called this afternoon. He was discussing Angela with another doctor. They both feel like it would be best if they address Angela's SVT now. The SVT is a problem with the electrical circuitry in her heart. Sometimes when the heart sends out a current to tell it to contract, the current gets looped back around. The loop causes her heart to beat really fast. When she was diagnosed, her heart rate was 267. Normally SVT isn't a major problem. She takes medicine to control it and there is a trick that she can do that fixes it. Dr. Shah thinks that because her heart is already having issues, that the SVT should be taken care of. I think what he meant was that if she has an SVT episode, she can have a sudden death event but he didn't want to say that. They want to go in with a cath again. They map the electircal current in her heart to figure out where the loop is occurring. Then they fix the problem. It doesn't always work. The procedure can last up to 8 hours. So we are supposed to get a call tomorrow to schedule the consultation with the doctor who will do the procedure. Poor Angie. This will mean she has 2 caths to look forward to. :( On a positive note, we have just about met our annual out-of-pocket in network max so this normally expensive proceudre should be pretty close to free for us.

I meant to tell you earlier too that Angela has decided to stay home next year for school. She has been trying to decide. I'm glad she'll be home..

OK, well that is all for now.

Love,

-Mel.

3 comments:

  1. I'll be praying that the SVT Procedure goes well.
    In Christ,
    Kristen Severson

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  2. My prayers are with your family. She is such a gorgeous girl!!!

    We live in Gilbert, AZ and my 4 year old was diagnosed with RCM and we were told May 11 she needed a transplant. We are just starting the transplant list steps.

    I pray God walks close by through everything!!

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  3. Wow, Kristi, thank you! I have so many questions for you! Are you planning on doing your transplant at UMC? Who is her cardiologist? Are you working with any non profits? How weird that there would be 2 cases in AZ of RCM diagnosed just a couple of weeks apart! Did they tell you how rare it is? I will be praying for your daughter too. How is she doing?

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